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All or Something: Honoring the Legacy of Pattie Cornute

Few recognitions could mean more to me than being selected as the recipient of first the Pattie Cornute “All or Something” Award by the American Lipedema Association (ALA) and Lympha Press. Receiving an award that bears Pattie’s name brings with it a mix of gratitude, humility, and reflection. While I am deeply grateful for this…

Hypermobility: What If the Missing Piece Was There All Along?

It took decades – and one unexpected question that didn’t emerge until my forties – for the pattern to finally come into focus. “Has anyone ever told you that you are hypermobile?” For most of my life, my health story felt like a collection of unrelated problems. Fainting, joint pain, anxiety, headaches, hiccups, dizziness, severe…

Reflections from the Boston Lymphatics Symposium: Gratitude, Grief, and a Line that Shouldn’t Have Been Crossed

I recently attended the Boston Lymphatics Symposium as a patient living with Lipedema. I left holding two emotions at once: profound gratitude and deep disappointment. First, the gratitude. I want to express sincere appreciation to the Boston Lymphatics Symposium for this year’s theme, “A Focus on Lipedema: Bridging Gaps.” For the first time, the conference…

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